My daughter has had multiple tics...not sure what to do at this point

10 answers /

Last post: 30/01/2024 at 2:20 pm

ANONYMOUS
Anonymous
22/09/2019 at 4:31 am
My daughter is 6 years old and she started with these little tics when she was 4 years old. The first one was eye blinking excessively and when I asked her doctor about it he said it was probably due to stress. This lasted a while and then one day just stopped. Then she had a tic where she would throw her head backwards and this was constant. Again this lasted a little while then suddenly stopped. Now she does this incredibly high pitched screeching noise and also something like a forced sneeze. Her doctors don’t seem to be worried but the fact that she has had multiple tics now and I’ve read some things about Tourette’s I am worried it may be serious. Any advice from other parents experiencing similar situations would be amazing!! Thanks in advance.
0
ANONYMOUS
Anonymous
27/09/2019 at 1:25 pm
You absolutely must demand a referral for your daughter. My son had the exact same things happen to him. The head throwing back on was the worst one for me and that was when I demanded him to be referred to a neurologist. I went to see the GP on my own as I did not want my son to hear how concerned I was over his tics. Usually the more attention you pay to them the worse it gets.
My son got the referral to the neurologist and luckily it was nothing major in his brain that was causing his tics. They then put it down to anxiety and development. He started seeing a psychologist to help him manage and control his tics. This helped massively. They said its called 'neurological tic disorder' and it is potentially something he will grow out of. I was so worried it would become full blown tourette's. He's 9 now and does some tics still but mild ones that are barely noticable. He did stop completely for while...I still don't fully understand it in all honesty but either way your daughter needs to be seen by a professional. Do not accept your gp sending you away. Hope I have helped somewhat xx
1
MARY C(187)
Mary c(187)
27/09/2019 at 3:46 pm
Hi Kelsey, my daughter who is now much older had some of the same things, lots of blinking when she was young, she pushed her head back slightly, the blowing through her nose. She still does some of these things but to a lesser extent. She does occasionally have panic attacks, so like Sarah anxiety was a big part of this, I think.

My daughter went about her anxiety and was given websites to look through to learn how to manage it but she was older by then. Another thing which helps a lot is magnesium supplements as that is a muscle relaxant. As your child is still only 6 she might be too young for that but if I were you I'd bring that up at the Drs if you decide to go again and see what they say about it, if not now then when she is older, perhaps.

To your main concern, for my daughter it didn't get worse and she doesn't have Tourettes.
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AMANDA M(26)
Amanda M(26)
10/01/2021 at 6:42 pm
In answer to
Anonymous
You absolutely must demand a referral for your daughter. My son had the exact same things happen to him. The head throwing back on was the worst one for me and that was when I demanded him to be referred to a neurologist. I went to see the GP on my own as I did not want my son to hear how concerned I was over his tics. Usually the more attention you pay to them the worse it gets.
My son got the referral to the neurologist and luckily it was nothing major in his brain that was causing his tics. They then put it down to anxiety and development. He started seeing a psychologist to help him manage and control his tics. This helped massively. They said its called 'neurological tic disorder' and it is potentially something he will grow out of. I was so worried it would become full blown tourette's. He's 9 now and does some tics still but mild ones that are barely noticable. He did stop completely for while...I still don't fully understand it in all honesty but either way your daughter needs to be seen by a professional. Do not accept your gp sending you away. Hope I have helped somewhat xx
How is your daughter now? I've got a similar situation with my son and not sure what to do to help.
0
AMANDA M(26)
Amanda M(26)
10/01/2021 at 6:44 pm
since your posts date back to 2019 - I'm wondering if your kids did get better? And what helped? My son (9)seems extreme...and worrying. Is it possible it can get better or go away?
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ANONYMOUS
Anonymous
10/01/2021 at 8:05 pm
In answer to
Amanda M(26)
since your posts date back to 2019 - I'm wondering if your kids did get better? And what helped? My son (9)seems extreme...and worrying. Is it possible it can get better or go away?
Hi, my daughter ended up seeing a specialist and we were told to just go about our days as normal and revisit if the tics persisted into the age of 9. She still has motor tics and physical tics now and she is 8 years old.
1

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ANONYMOUS
Anonymous
10/01/2021 at 8:11 pm
In answer to
Amanda M(26)
How is your daughter now? I've got a similar situation with my son and not sure what to do to help.
We did see a specialist about her tics and they recommended we go about our days as normal because her tics were not hurting her physically but we were told to revisit the issue when she turned 9-she is 8 now and she still has motor and physical tics. She does ok with the tics daily otherwise.
0
KAREN M(48)
Karen M(48)
18/05/2022 at 5:44 am
In answer to
Anonymous
You absolutely must demand a referral for your daughter. My son had the exact same things happen to him. The head throwing back on was the worst one for me and that was when I demanded him to be referred to a neurologist. I went to see the GP on my own as I did not want my son to hear how concerned I was over his tics. Usually the more attention you pay to them the worse it gets.
My son got the referral to the neurologist and luckily it was nothing major in his brain that was causing his tics. They then put it down to anxiety and development. He started seeing a psychologist to help him manage and control his tics. This helped massively. They said its called 'neurological tic disorder' and it is potentially something he will grow out of. I was so worried it would become full blown tourette's. He's 9 now and does some tics still but mild ones that are barely noticable. He did stop completely for while...I still don't fully understand it in all honesty but either way your daughter needs to be seen by a professional. Do not accept your gp sending you away. Hope I have helped somewhat xx

Hi, I am new here and saw your reply. How is your son doing? My son has the exact same thing.

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ANTONY 1
Antony 1
22/01/2024 at 7:31 pm

Has it improved now ? I’m going through same situation . Any advice would be helpful:(

0
ANTONY 1
Antony 1
30/01/2024 at 2:20 pm

What is the situation now ? My LO is doing it for last 3 years . Please help

0
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